In Malaysia, many adults are part of the "sandwich generation"—those juggling care for both their children and aging parents. Most caregivers are informal, and based on the February 2024 Labour Force Survey, 7.23 million Malaysians are outside the workforce, mainly due to family duties. Some even handle a “second shift” of caregiving after work.

Caregivers Share Their Journeys

Liew Chooi Mei, a former kindergarten teacher and volunteer at Life Line Association Malaysia (LLAM), cared for her dementia-stricken mother and previously, her late father with cancer. Liew faced emotional strain and guilt during caregiving but found relief through LLAM's counselling support. Now leading LLAM’s public awareness programmes, she urges caregivers to care for themselves and not feel guilty seeking help like respite or daycare.

Nurain Saiful Ahmad, a 39-year-old government officer and mother of two, helps care for her aging, ill parents alongside her five siblings. Though her elder sister provides primary care, Nurain contributes financially—about RM1,500 monthly—and emotionally. Balancing her responsibilities through strong communication with her husband, she also prioritizes "me time" through activities like walking, badminton, and karaoke during her commute.

Cason Ong Tzse Chun, 56, cares for his two special needs children while also supporting his parents and uncle. After retiring from his family business, he and his wife began a small food business. Ong actively volunteers with autism-related organisations. His children, despite challenges, engage in part-time work and community programs to build independence.

Dorothy George Dass, 69, raised her autistic son Abraham, now 24 and working as a mechanic with dreams of joining an F1 team. With patience and ongoing support, including therapies from Nasom, she helped him thrive. She credits her supportive employers for allowing her the flexibility needed to be present during her son’s key developmental years.